Designed to deliver multiple adaptive modes of on-site care, Ryan House embraces all children and their families as they navigate life-limiting or end-of-life journeys. Here, we are realizing both the philosophy and the practice of pediatric palliative care. We are the only organization of our kind in the Southwest, and one of three in the country. Our services are provided at no cost to families.
Pediatric Respite Care
Respite care is a gift of time; short-term overnight stays that help a family take breaks from the stress of ‘round the clock home care. It also creates opportunities for kids to be kids, where they can spend time with other children like them. Respite care becomes a necessity, not a luxury. It is the solution for renewed energies and fresh perspectives, as regular “time off” for caregivers is essential to help prevent family fatigue and breakdown. At Ryan House, children and families can receive up to 28 days of respite care per year.
Pediatric Palliative Care
Pediatric palliative care is both a philosophy and method of care. It aims to holistically identify and alleviate the physical, psychosocial, spiritual, and emotional pain for both the child and the family. Its primary goals are to enhance quality of life, minimize suffering, optimize functions, and provide opportunities for personal growth.
Life-Enhancing Therapeutic Activities
Certified child life specialists and trained volunteers provide activities that address the isolation, pain, and fear children and their siblings face with diagnosis. They also improve overall quality-of-life by providing opportunities to experience new sensations, develop skills, and gain confidence. Activities include: Legacy Building, art, music, pet, sensory, recreational, and hydro-therapeutic activities.
Pediatric End-of-Life Care
Families with a child facing end-of-life receive supportive planning and compassionate care consistent with clinical, cultural, and ethical standards. Ryan House also provides parents or guardians and siblings with a loving system of support and comfort. End-of-life care is provided in partnership with our Care Partner, Hospice of the Valley.
Grief and Bereavement Support
Ryan House offers grief and bereavement support to families in a number of ways, including: Sibshops, family counseling through various programs, an annual community event to honor passed children, bereavement boxes to families that are filled with special keepsakes. Additionally, the Care Team provides anticipatory grief support to children, siblings, and their families.
Support for Siblings
Watch for details on Sibling Bridges of Support and Hope offerings for this school year coming soon.
These workshops provide a chance for kids ages 5-13 to interact with other kids whose brothers and sisters have similar needs.
For more information, please contact Child Life Specialist Gigi Elliot at email@example.com or (602) 234-6700.
Refer a Family
Is there a family that should know about Ryan House?
If you know a family that may meet the qualification factors for respite stays and would like to refer them, please download our Family Brochure to share with them. From there, the family can contact our Care Team directly where someone will provide them with the information they may need to move forward.
Medical Professionals can also refer a family to Ryan House. If your team wants to learn more about pediatric palliative care, or about the services provided at Ryan House, our staff is committed to working with you and your team.